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Torres attests to great work done by Jordan’s starting-gate crew

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The whole thing took maybe five seconds.

But if not for the instantaneous reaction and action of Ellis Park’s starting-gate crew last Sunday, jockey Francisco Torres probably wouldn’t be riding this weekend — maybe never again.

Sunday’s scary mishap — when Torres’ mount, Blake Beauties, flipped in the gate and the jockey wound up going to the hospital — provides a high-profile case study of the horsemanship, agility, quick thinking and bravery that the starting-gate crew displays on a regular basis but largely out of the limelight. It also displays the amazing athleticism, toughness and durability of jockeys.

Here’s what happened in the fifth race, for $5,000 claimers going 5 1/2 furlongs on the turf:

“I’m in the 1 hole waiting for the other horses to load,” Torres said. “She went backwards so high. She didn’t throw me out the back, so I just stayed on her. I didn’t step off or anything. Well, when she came down, she went down forward so quick, that she threw her head underneath her front legs and pitched me right over her head. I didn’t have any chance whatsoever to react. I just fell underneath her. One second I’m on her back and the next I’ve got nothing but (her) legs.”

When Blake Beauties reared again, Torres fell from being pinned between the horse and the gate stall’s front doors. Starter Scott Jordan instantaneously pulled Torres out from under the gate.

“I’m on the bottom,” he said. “Not because she’s doing it intentionally, but she’s nervous and I’m down there trying to scramble to get out and pushing on her. And she’s going berserk. At one point I put my hands up to cover my face, and that’s when she hit me with a hoof and split my arm open. At that same moment I just felt somebody – which was Scott — reach up there and pull me right off from underneath the gate.”

A split-second later, Blake Beauty flipped, twisted and got stuck in her gate stall. By then, Torres was out and the assistant starters had unloaded the horse next to her and were backing out the others to keep them from getting riled.

“That’s instinct,” Jordan said. “I just ran out there and grabbed him. He was in a bad spot. And then he said his neck (was bothering him), and then I was worried, ‘Now, I’ve messed something up worse because I jerked him out of there.’”

Torres has resumed riding at a high level after three broken necks throughout his long career. So when he said his neck was bothering him, Jordan was clearly a man beating himself up. Jordan, however, was the only one second-guessing his action. State steward Barbara Borden, who saw the action live and in replays, called his fast work “heroic.”

The biggest endorsement comes from Torres.

“I called Scott when I heard he was concerned,” the jockey said. “I thanked him and said, ‘Actually, you saved my life.’ I would have done the same thing. What are you supposed to do? Let the horse trample someone in there?…. It was a very heroic move.”

Asked how long the sequence took, Jordan queried one of his lieutenants, Jody McShane, and said, “What do you think the whole thing took? Five seconds?”

From his post in front and just off the side of the gate, Jordan was in closest proximity, because his team was all behind the gate loading horses or in the gate with horses that had already gone into their starting stall.

In an equine version of NFL Hall of Famer Gale Sayers’ mantra in his best-selling biography “I Am Third,” the starting-gate members place their own welfare behind  the jockey and then the horse.

“That’s our first thing: Get the rider out of there,” Jordan said, adding of Torres, “And no one could from the back of the gate. It was just lucky I could get there from the front of the gate and do it, because nobody could get there quick enough. They’re trying to get the other horses out of there and keep something else from getting hurt. They’re doing their job, because I already had Torres and gave him to someone else and said, ‘Take him to the ambulance; his neck’s hurt.’”

The assistant starters still faced a dangerous situation with Blake Beauties. She’d gotten a front leg up on one of the pontoons, the four-inch ledge upon which assistant starters stand in the gate with a horse, and another leg under the gate. Still, extricating a scared horse who weighs a half-ton with very hard hooves from a confined space is just part of a gate crew’s job description.

“That’s just routine for us,” Jordan said. “You don’t panic. You don’t go yelling and screaming and everything. You assess what you’ve got to do and you do it. And you do it in a timely fashion and you try to keep someone else from getting hurt. These guys, they forget about themselves. They just go in and do it. It’s not, ‘I could get hurt when I run in there.’

“Everything worked out well. The horse got beat up some, but no serious injuries. Cisco got beat up some, but no serious injuries. If you look at it in the big picture, it was a good outcome on a bad situation.”

Meet Scott Jordan and his crew, along with jockey Sophie Doyle

The public can meet Jordan and his crew and see in person how they work to teach horses to break safely from the starting gate. “Making of a Racehorse,” Ellis Park’s Saturday morning fan experience staged in conjunction with the Kentucky division of the Horsemen’s Benevolent and Protective Association, begins every Saturday morning in August at 7:30 Central by the starting gate, with parking adjacent in Ellis’ south end parking lot by the Ohio River levee.

This week’s participating jockey is Sophie Doyle, who finished a close second in last Saturday’s Groupie Doll Stakes in only third mount since returning from a badly fractured collarbone. The free event, with kids welcomed, moves from the starting gate to trainer John Hancock’s barn, where conversation will include Dr. Bruce Howard, the Kentucky Horse Racing Commission’s chief state veterinarian, and KHRC director of enforcement Chris Clark. Also on hand answering questions  will be track announcer Jimmy McNerney.

jordan talking to crew

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Owner Albaugh, trainer Romans sweep pair of 2-year-old maiden races

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Dennis Albaugh’s Albaugh Family Stable and trainer Dale Romans swept Ellis Park’s pair of 2-year-old maiden races Friday, with Not This Time romping by 10 lengths in the mile fourth race and Reedini prevailing by 3 1/4 lengths in the 6 1/2-furlong seventh.

“Wow! Wow! Wow!,” jockey Robby Albarado said as he was lead into the winner’s circle aboard Not This Time.

Not This Time, in his second career start after breaking slowly and finishing fifth in a tough Churchill Downs’ maiden race won by eventual Saratoga stakes-winner Bitumen, powered to a 10-length victory over Society Beau, covering the mile in 1:35.99 with a final eighth-mile in 11.82 seconds even with Albarado gearing down. He paid $3 as the 1-2 favorite.

“That’s impressive,” Albarado said. “What I felt was extreme talent there. What a nice horse! I rode him first time and he did everything possible wrong he could do. Today he broke, put himself in the race. I wasn’t planning going to the front, but man, a nice horse. Take nothing from the rest of them. But I could have squeezed him and sprinted home faster than he did. Some kind of feeling.”

Continued Albarado, rider of Horses of the Year Curlin and Mineshaft: “I’ve been on just a few of those. Just a few.”

“He’s the real deal,” Romans said from Saratoga, as he prepared to fly to Chicago for Saturday’s big race card. “I told Robby the first time he rode him that he might be as good a horse as he’s ever ridden. Of course, he didn’t break that day. This is a serious, serious racehorse.”

Romans said they were looking for a mile race to use as a steppingstone to Churchill Downs’ $150,000, Grade III Iroquois Stakes at 1 1/16 miles on Sept. 17, a race whose winner gets their entry fees paid and a travel stipend to the $2 million Breeders’ Cup Juvenile at Santa Anita.

“That was pretty spectacular, but I expected a big effort,” Romans said. “I knew that he was special. It’s nice for him to go on and back up what he was showing in training.”

Not This Time is a son of Giant’s Causeway, who also the sire of Albaugh and Romans’ Toyota Blue Grass winner Brody’s Cause. His mom, Miss Macy Sue, was a top sprinter who also has produced Breeders’ Cup Dirt Mile winner Liam’s Map and the stakes-winning Taylor S. Romans said he believes the source of the name is Albaugh’s chagrin over selling $1.35 million-earner Liam’s Map as a yearling for $800,000 at Keeneland’s 2012 September sale.

Channing Hill picked up the mount on Reedini when jockey David Flores got stuck in New York because of flight cancelations. Reedini also led all the way to prevail over Texas Sky, who wore down the Churchill Downs Racing Club’s Warrior’s Club to take second by a head.

“He’s all right. That was a nice work for him,” Hill said of Reedini, who covered 6 1/2 furlongs in 1:16.88 as the 8-5 favorite. “I’m just glad to pick up the mount. This is my first win for Dale Romans; I’ve had a lot of seconds and thirds for him.

“There’s a little greenness. But he’s very smart, an intelligent little horse, wants to do everything right. He kind of surprised me when he made the lead down the backside. Honestly, I thought they went a little slower because he just did it so easily. Then he took a couple of nice deep breaths around the turn, and when I asked him at the top of the lane, he got a little pressure and showed his little turn of foot. Then he just kind of idled from the eighth pole out. Even galloping out, any horse that takes you back galloping out, is one you feel like will really progress.”

Reedini, a $350,000 yearling purchase who is out of the same mare as the champion sprinter Midnight Lute, also was making his second start, having been third by a total of a half-length in the slop June 23 at Churchill.

Reached for a second time by phone, Romans said of Reedini, “This is another good one.”

Romans said he didn’t know about running the two horses against each other in the Iroquois, given the common ownership. “But we’ve got a van, we can travel,” he said. One possibility could be a race in New York, he said. “We’ll just see how things unfold the next couple of weeks.”

Trainer Ian Wilkes, whose horses running at Ellis Park are overseen by assistant Bob Tucker, won his eighth race of the meet as Lucky Seven Stable’s 4-year-old filly Sweet Tapper and jockey Corey Lanerie spurt out of the pack to take the $39,000 entry-level allowance on turf by a half-length over Sister Blues and Joe Johnson.

On the claiming-ranks front, James Utley’s Showbiz Star became the the fifth horse to win twice at the meet — and the first of those to also have a second — as the 5-year-old gelding captured the fifth race. Claimed by trainer Jeff Barkley for Utley for $8,000 at Churchill Downs, Showbiz Star was a close second for $7,500 July 9 at Ellis before winning for the same claiming price July 22. In for a $5,000 claiming tag in Friday’s 1 1/16-mile turf race, he won as the favorite by two lengths over Sky Alert. He was claimed back out of the race by his prior connections, trainer Thomas Trione and owners Bonnie and Ken Schreiter.

“We were just looking for something to win some races and got lucky,” Barkley said. “He’s a pretty neat little horse. It worked out well. You get lucky sometimes when you claim a horse; it doesn’t always turn out that way. He was in where he needed to be. The name of the game is to win some races, and we’ll find another.”

Women’s Soccer enjoys 2-1 exhibition win over Racers

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 It was an impressive season-opening display for the University of Evansville women’s soccer team on Thursday evening as the Purple Aces dealt preseason Ohio Valley favorites Murray State a 2-1 exhibition defeat at Arad McCutchan Stadium.

“We showed some good stuff today, but we were exposed at times with things that we need to work on,” UE head coach Krista McKendree said. “That’s what you want out of these games. Hopefully, we’ll leave here with some positives and things that we can build on going forward.”

The win, which saw the defending Missouri Valley tournament champion Aces come-from-behind, comes just one week into preseason preparations for UE, which will open its 2016 regular season campaign at Xavier on Aug. 19. The next home game for the Aces will be one week later as Cincinnati will pay a visit to campus on Aug. 26.

Despite spending the early part of the game on the front foot, it would be the Racers who drew first blood with a well-worked goal as Harriet Witchers and Taylor Richerson linked up on the right side of the 18-yard box before laying it off for Madalyn Germann’s opening tally in the 25th minute.

Colleen Dierkes supplied the answer 15 minutes later with strike from just outside the box to level the affair in the 40th minute.

“I found an opening and took a shot,” Dierkes explained. “It was a great ball in from Jordin [Campbell] initially, and I just really wanted to get back even after the first goal because I didn’t feel like I was on my mark. I wanted to make sure that I could get the goal back and tie it up.

From there, Murray State would have its opportunities going forward in the second half, but the Aces seemed to rack up the chances, thanks in large part to the return of Montana Portenier after missing last season due to injury.

“We know what she’s capable of,” McKendree said of Portenier. “Our newcomers are learning how to play with her. They’re learning her strengths, and she’s learning the strengths of those around her. We’re going to create chances in games, and we have to make sure that we take advantage of those opportunities.”

Portenier’s most frequent collaborator down the right flank in the second half seemed to be Sara Osinski, who ultimately broke through for the game-winning goal in the 75th minute with a long-distance strike of her own.

“Last season, we started off slow before having a great ending,” Dierkes said. “Being a senior this year, I feel like we need to be able to come out and show people that even though we lost those seniors, we’re still a good team. I’m happy we were able to come into this game and get the victory to show for all the hard work that we’ve been putting in during two-a-days this preseason.”

The Aces will be back in action with another exhibition contest at Eastern Illinois on Sunday. Kickoff is slated for 1 p.m.

 

It’s Time For City Council To Start Challenging The City Deficient Spending Practices

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It’s Time For City Council To Start Challenging The City Deficient Spending Practices

The political circus at City Council budget hearings for 2017 have begun.  We enjoy watching Finance Chairman Dan McGinn, President Missy Mosby,  Vice President  Jonathan Weaver and City Controller Russ Lloyd Jr do a “balancing act” with past due bills, advancement on future revenue and proposed tax increases they insist are “negligible”.

In the current 2017 budget hearings we are waiting for members of City Council to start challenging the city deficient spending practices and do a better job in questioning the continued waste of our hard earned tax dollars by the Winnecke administration.  We have become more concerned about the City’s finances with each passing City Council meeting,

For over a year we suspected that the city finances were in bad shape.  Last week City Council Finance Chairman Dan McGinn disclosed that the city finances are indeed in bad shape.

Some Evansville residents are already struggling to hold on to their homes, buy medications, pay ever increasing utility bills, and put food on the table.  Young families are scraping  to save money  for a down payment on a home to put down roots in a city that presently doesn’t have an over abundance of good-paying jobs.

We have been saying for many months that the  City of Evansville Employee Health care funding is in trouble and a day of reconvening is near.   City Council is now telling us that Evansville is expected to have more income tax revenue than in previous years, but council leaders want to cut extraneous funding to reflect a sharp increase in Employee Health costs for city employees.  The City’s Employee Health care plan for its employees is changing next year saving the city about $3.6 million. The cost savings to the city will increase the employees’ deductibles and out-of-pocket expense.

The Mayor’s office budgeted $301,000 for nonprofits in 2017 and council leadership seemed in agreement.  We are now hearing that City Council President Missy Mosby, D-2nd Ward has alleged that she’s being inundated with calls from  city employees upset with the proposed changes to the 2017 Employee Health care plan. We wonder where in the world Ms Mosby has been for the last several years when she and fellow Council members voted for every spending request the Mayor submitted.

Its time that Council make some tough choices in order to balance the budget, like laying some employees off, no pay increases for city council, and city employees together with department heads and  the Mayor’s staff for 2017.  Of course,  delay the expansion on new exhibits for the Zoo,  eliminating the funding of “political pork barrel” projects, make major reduction to city grants given to area not-for-profits, make cuts to sports grants, suspension of capital projects requested by department heads,  put a freeze on hiring new employees for 2017,  cut the proposed 2017 city budget by 2%. across the board and address the Employee Health care funding problems head on.

The most important ingredient that we believe has been missing from the discussion about how to stretch the budget is simple; the city administration and the Council needs to adherence to the principle that requires transparency and a willingness to be innovative in order to promote local government efficiencies.

Finally, it looks like former City Council member and Chairman of the Budget Committee John Friend CPA warning that major budget problems will be facing Council in 2017 was spot on!

FOOTNOTE: The new slogan for City Council is ‘PENGUINS OVER CITY EMPLOYEES HEALTH INSURANCE”?

IS IT TRUE AUGUST 12, 2016

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IS IT TRUE we can’t wait for the City of Evansville Council members start giving their doom and gloom reasons why they should pass Dan McGinn’s resolution to reduce the percentage of the HOMESTEAD TAX CREDIT for the 2017 budget year?

IS IT TRUE that City Controller Russ Lloyd Jr reported that the General Fund had $3.9 million as of June 30, 2016?   …if he would had properly paid back the unauthorized disbursement from the Riverboat Fund in the amount of $12.5 million the General Fund would be negative by $8.4 million?

IS IT TRUE its alleged in 2016 that City Controller Russ Lloyd Jr failed to transfer $7.5 million from the General Fund into the Employee Hospitalization Fund which caused that fund to be negative by $7.5 million as of June 30, 2016?  …if this allegation is correct we wonder what the balance of this account was at the end  of 2016?

IS IT TRUE we wonder why members of City Council aren’t talking about making some serious budget cuts in order to help balance the proposed 2017 budget?

IS IT TRUE one thing that City Council members don’t want the public to know is that the City of Evansville received around $2 million dollars from the State because of an increase in the LOCAL OPTION INCOME TAX for 2016?  …we hope the City put this financial windfall from the State into the “Rainey Day Fund”?

IS IT TRUE we left the current ‘READERS POLLL” question up for a couple extra days in order to make a point?  …we hope City Council members will finally get the message that the homeowners of this community are strongly opposed to the resolution that reduces the HOMESTEAD TAX CREDIT percentage to help pay for Council bad spending habits during 2016?

IS IT TRUE it looks like the election promise made by candidates for City Council that they are going to be a fiscal watchdog is down the tube?  …don’t you just like it when political types run for re-election as a right wing fiscal conservative and turn out to be a left wing tax and spend liberal?

IS IT TRUE its obvious during the 2016 budget year that Mayor Winnecke got everything he wanted from council ?  …it looks like our current City Council will continue to give Mayor Winnecke everything he wants in the proposed 2017 budget?

IS IT TRUE we predict that City Council will give approvals for some expenses capital projects for 2017?  …don’t be surprised that additional funds will given to phase in SpotShooter, Roberts Park, a South American Penguin exhibit at Mesker Park Zoo, a new Aquatic Center located on the North end of town?  …we hope when Council give permission to fund these projects they will also put money in the budget for upkeep of these new endeavors?

IS IT TRUE one would expect after last year city election we would have at least one strong independent thinking and fiscally conservative person on council? …these are the kind of results you get when only 7 percent of people turnout to vote?

IS IT TRUE we urge you to go to the link of the Vanderburgh County Food Inspection Report For 8-11-16 in todays edition?

IS IT TRUE we would like to thank the staff at the City Clerk office for their excellent cooperation in sending us information we request in a timely manner?

FOOTNOTE:  “IS IT TRUE” will be posted next Monday.

Todays READERS POLL question is: Do you support Councilman Dan McGinn’s Homestead Tax Credit resolution that reduces the percentages of our tax credits?

Please take time and read our newest feature articles entitled “ AUGUST BIRTHDAYS, HOT JOBS” and “LOCAL SPORTS” posted in our sections.

If you would like to advertise in the CCO please contact us City-County Observer@live.com.

City County Observer has been serving our community for 15 years.

Copyright 2015 City County Observer. All rights reserved. This material may not be published, broadcast, rewritten or redistribute.

NEWS FROM TV CHANNEL 44

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Changes Could Come to Evansville Electronic Message Sign Ordinance

The amendment to the city zoning code will eliminate a few steps in the process if city council gives the ‘ok.’

“What we try to do is make the permitting process a little bit easier,” said Ron London, Evansville Area Plan Commissioner.

Churches, schools and hospitals are considered special use groups.

Under the current ordinance these groups would have to go through many steps to get approval for an electronic message sign to be allowed on their property.

“They would have to go through the rezoning process, they would have to go through the area plan commission and then through city council,” said London. “And then they would have to go through the board of zoning appeals to get the special use approve for the electronic message board.”

With the amendment approved by the area plan commission, those groups will only have to go to the board of zoning appeals to get it approved.

The board also put a restriction of three seconds on the amount of time between messages on signs smaller than 12 inches in overall height.

“We wanted to make sure there was enough time between messages where it wouldn’t come out to be more of a flashing sign,” said London.

The amendment will have to pass city council before it’s in the books.

What Happens to Developmentally Disabled as Parents Age, Die?

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What Happens to Developmentally Disabled as Parents Age, Die?

by JEN FIFIELD for STATELINE/PEW TRUST

ROCKVILLE, Md. — Ever since she was 4, when a caregiver force-fed her with a spoon, Caroline Munro has not let anyone feed her but her mother.

The 22-year-old has cerebral palsy and an intellectual disability. She doesn’t speak and functions at a preschool level. Her mother, Beth Munro, feeds her with a fork or her hand.

As Beth ages — she’ll be 68 in October — she wonders who will care for Caroline when she’s no longer around. But she may never know. Caroline is on a Maryland waiting list for additional Medicaid services for the disabled. The list is thousands of names long, and as in many states, names often stay on it until a caregiver falls ill or dies.

About 860,000 people over 60 nationwide are in Beth’s place, caring for someone with intellectual or developmental disabilities in their home. And many are waiting, sometimes for years, for state-provided Medicaid help for their disabled child, sister or brother, such as placement in a group home, day services, or transportation or employment programs. If they can’t afford to pay for these services on their own, under the federal-state Medicaid system, their relative could end up in an institution.

As the number of older caregivers grows, and their need for help becomes more dire, a few states have passed laws to give older caregivers a chance to help decide where, and how, the person they care for will live. Tennessee passed a law in 2015 to ensure that anyone with an intellectual disability and a caregiver over 80 got the services they needed, and this year the state expanded the law to those with caretakers over 75. And in 2014, Connecticut passed a similar law that is helping about 120 people with a caregiver over 70.

But the waiting lists for needed services in these states and many others are still thousands of names long. In recent years, states such as Maryland, Virginia and Pennsylvania have put money into their budgets to try to chip away at the lists, and they get federal matching dollars to help pay for it. Some states are prioritizing people with urgent needs, while others are prioritizing students as they age out of school.

Yet advocates for people with disabilities, such as Nicole Jorwic, director of rights policy at The Arc, a national nonprofit, say there needs to be a federal fix.

“Something that pumps money into the system,” Jorwic said. “And that’s just not going to happen in the current climate in Congress.”

In Maryland, Beth Munro realizes that unless she becomes seriously ill or dies, her daughter might not be placed in a group home.

“I’ve worked really hard at the issue over the years,” Beth said, “and you get nowhere.”

First Generation

This generation of caregivers over 60 watched over decades as the U.S. grew more understanding and inclusive of people with disabilities. A movement swept the country in the 1970s and ’80s to deinstitutionalize people with disabilities. And for decades now, most people with disabilities who receive Medicaid help have been cared for at home by family members.

In 2013, spending for community- and home-based services surpassed spending for large institutions, such as mental hospitals and nursing homes, for the first time. By that time, 14 states no longer had any large state-run institutions for people with intellectual or developmental disabilities, and many others had only a few, according to University of Colorado research.

The move to deinstitutionalize care has provided care that is more personalized while also saving states money. Average costs for care in a state-run institution, in 2013, ranged from about $129,000 a year in Arizona to about $603,000 in New York, while the average state costs of community-based services nationally is $43,000, according to the University of Colorado.

What this has left, though, is fewer residential options, and lengthening waiting lists. About 198,000 people were waiting for home- or community-based services in the 34 states that reported data in 2013, according to University of Minnesota research. The longest waiting lists were in Ohio (41,500), Illinois (23,000) and Florida (22,400).

Some states don’t keep waiting lists. In California, people with intellectual or developmental disabilities qualify for the services they need under a state-run health system. This means they should be getting the services they need.

But April Lopez, chairwoman of California’s State Council on Developmental Disabilities, said that’s not always the case there. Some services aren’t available when you need them, she said. The state’s reimbursement rate is so low, she said, it discourages doctors and health centers from providing services.

If states aren’t able to provide services for everyone, they should focus on providing more support for family caregivers, such as high-quality case management and respite services, said Susan Parish, director of the Lurie Institute for Disability Policy at Brandeis University in Massachusetts.

With medical, technological and public health advances, people with disabilities are living longer than before, Parish said. And with family size shrinking over the years, fewer siblings are around to assume care of their brother or sister as their parents age.

Caregivers need help transitioning out of their role — finding the person with disabilities a place to live, money, benefits and a new guardian, Parish said.

“I’ve worked with several parents who said they’ve hoped their son or daughter would die before they did because they don’t feel there are supports out there,” she said.

Some Steps in Some States

Beth Munro said she has felt that way, at times. She said she has been caring for Caroline on her own since she was 9 months old. Caroline has a brother and sister, but they live out of state and Beth doesn’t want them to have to take over her role. Caroline’s cerebral palsy affects both of her arms and legs. She is dependent for all of her care and can’t be left alone.

But her laugh is full of life, and she laughs often. Her mother says she is generally a happy person. She is in a day program with other adults with disabilities, and they often go out into the community, like to a nature center or to the movies.

Under Maryland law, people with intellectual or developmental disabilities who are transitioning out of the school system at age 21 receive some services. Yet 7,600 people on the waiting list in Maryland either have no services or need more.

Last year, Gov. Larry Hogan, a Republican, added $3 million to the budget, which served about 120 people who were deemed to be in crisis, and added $3.5 million this year for the same purpose.

This has been a bright spot in a decadeslong fight by the Maryland affiliate of The Arc to educate people and get more funding, said Cristine Marchand, its executive director.

In the past, the organization would suggest a new tax in the state to cover the expenses — a tax on snacks or telecommunications — and each time the governor at the time would take the money and use it for something else, Marchand said.

Whether a state makes progress addressing the issue has less to do with the political party in power and more to do with how much officials know about the issue, or how much influence advocates have, said Bernard Simons, Maryland’s deputy secretary for developmental disabilities.

Simons has worked in similar jobs in five other states and he said it’s the same wherever he goes — parents dying or getting sick, and children left with no plan in place.

States, including Maryland, need to be planning more, he said, instead of just reacting to emergencies.

In Pennsylvania, which has one of the largest waiting lists — about 13,800 people — Republican state Rep. Thomas Murt said he has several bills pending in the Legislature that would collect money specifically to provide services for the people on the list using different taxes, including on natural gas, tobacco, and vaping.

Like Maryland, Pennsylvania provides services for students transitioning out of school — about 700 a year. But sometimes it takes an older caregiver falling ill to get help, Murt said. “If another state is doing a better job, I think we should take a look at what they’re doing.”

Courts have ordered some states to provide more community-based services.

Virginia is making big changes to how it serves people with disabilities because of a 2011 settlement with the U.S. Department of Justice, which found that the state was needlessly keeping people in institutions and failing to provide enough community-based alternatives.

The state agreed to close down four of its five large institutions and serve 4,170 new people with community-based supports by 2021.

Helping Elderly Caregivers First

In Tennessee, The Arc Tennessee, an affiliate of the national group, pushed the Legislature to help older caregivers.

And, because these people have gone without the state’s help for so long, the Legislature wanted to help, said state Rep. Bob Ramsey, a Republican who advocated for the state’s new law.

“I felt it really appropriate for us to do something to give them some relief and some assurance that they weren’t going to have children, loved ones or friends that were assigned to institutions,” Ramsey said.

About 6,000 people are on the state’s waiting list, but that’s only people with intellectual disabilities. Before this year, a person with a developmental disability but not an intellectual disability did not qualify for services. But the state is making changes. As of July 1, people with intellectual or developmental disabilities qualify for services under the state-run health system, as they do in California.

The state plans to provide new home- or community-based services to 1,700 people — compared to the 100 or 200 people it has been helping in recent years — on the waiting list this budget year, according to a spokeswoman, Sarah Tanksley.

Hope for an ‘Active Life’
In Maryland, Beth Munro has struggled for years to care for her daughter on her own. She said it’s tough to find the strength to lift her daughter in and out of the bathtub every night.

But later this month, she’ll be getting extra help. The state just approved 35 hours of in-home services for her, including for bath time.

Still, she hopes her daughter can move into a group home soon, so she can start to learn to live without her mother and do the kinds of things she likes, such as sewing, taking photos and dancing in her wheelchair — with help from others.

“That’s the main thing,” Beth said. “Not only that she’s well taken care of, but that she has an active life, doing things that she likes to do.”